by Outcast_Searcher » Sun 21 Oct 2012, 05:10:44
$this->bbcode_second_pass_quote('SeaGypsy', '
')Death is perhaps the most interesting topic in life, and the one most studiously avoided.
Lots of good points in this thread. The studiously avoided part is certainly right.
Along that line, I thought I'd pass along two practical things I learned that might help someone dealing with a loved one in serious decline:
1). Palliative care can be truly awesome. I had thought that Hospice was mostly about preparing for relatively imminent death. There is a separate pain management section that is COMPLETELY different (different people, etc) that is all about palliative (pain) care. For someone in long term serious pain, there was some very creative, caring, effective, and even experimental treatment going on that really impressed me. The fees were surprisingly reasonable, and (for the elderly) medicare handled the vast majority of it. When things went from long term to end-of-life diagnosis, they smoothly transferred to the other unit. My fabulous nurse-practitioner contact even volunteered to let me call him to help if needed -- even though he wasn't supposed to do that.
2). You do NOT have to put up with a bad nursing home doctor or bullying. If you can find a separate doctor who specializes in monitoring and helping nursing home patients -- if the nursing home doctor sucks -- just tell them you want to formally dismiss him/her and use your own choice of doctors (you'll have to sign something). They may try to bluff you as they get kickbacks from the overpriced low quality care that may be offered -- but they can't stop you. In my case once I (accidentally) discovered this from another patient's child who suggested it -- things quickly got MUCH better, with 24 hour nurse-practicioner availability on his staff. Sometimes being able to just ask a question about a symptom from a competent medical source can save a bunch of suffering or needless anxiety.
Given the track record of the perma-doomer blogs, I wouldn't bet a fast crash doomer's money on their predictions.