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PeakOil is You

Dealing with death

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General interest discussions, not necessarily related to depletion.

Re: Dealing with death

Unread postby Outcast_Searcher » Sun 21 Oct 2012, 05:10:44

$this->bbcode_second_pass_quote('SeaGypsy', '
')Death is perhaps the most interesting topic in life, and the one most studiously avoided.

Lots of good points in this thread. The studiously avoided part is certainly right.

Along that line, I thought I'd pass along two practical things I learned that might help someone dealing with a loved one in serious decline:

1). Palliative care can be truly awesome. I had thought that Hospice was mostly about preparing for relatively imminent death. There is a separate pain management section that is COMPLETELY different (different people, etc) that is all about palliative (pain) care. For someone in long term serious pain, there was some very creative, caring, effective, and even experimental treatment going on that really impressed me. The fees were surprisingly reasonable, and (for the elderly) medicare handled the vast majority of it. When things went from long term to end-of-life diagnosis, they smoothly transferred to the other unit. My fabulous nurse-practitioner contact even volunteered to let me call him to help if needed -- even though he wasn't supposed to do that.

2). You do NOT have to put up with a bad nursing home doctor or bullying. If you can find a separate doctor who specializes in monitoring and helping nursing home patients -- if the nursing home doctor sucks -- just tell them you want to formally dismiss him/her and use your own choice of doctors (you'll have to sign something). They may try to bluff you as they get kickbacks from the overpriced low quality care that may be offered -- but they can't stop you. In my case once I (accidentally) discovered this from another patient's child who suggested it -- things quickly got MUCH better, with 24 hour nurse-practicioner availability on his staff. Sometimes being able to just ask a question about a symptom from a competent medical source can save a bunch of suffering or needless anxiety.
Given the track record of the perma-doomer blogs, I wouldn't bet a fast crash doomer's money on their predictions.
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Re: Dealing with death

Unread postby SeaGypsy » Sun 21 Oct 2012, 06:51:56

So true OS; good palliative care is a chance to get many things in order. Our ability to war on pain is much more advanced than our ability to fight cancer.

I have had palliative clients who want to be up and ready for the day at 6.00 am then in bed at 10.00 pm and I have met that need when nobody else would. The rewards were immeasurable for me, plus the pay wasn't bad either, with overtime etc.

My experience mirrors yours in seeing a whole different side to the medical profession, in the palliative care teams in outpatient care support. It's a side most of us never want to see or even acknowledge, but it exists and is a wonderful thing when the time comes.
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Re: Dealing with death

Unread postby Ibon » Sun 21 Oct 2012, 08:02:50

$this->bbcode_second_pass_quote('Quinny', 'D')espite all our differences there are some pretty decent people hang around here.


So true. Existential consequences like death or hurricanes draw a community together....all the more poignant considering the topic of this site that has attracted all of us here.
Patiently awaiting the pathogens. Our resiliency resembles an invasive weed. We are the Kudzu Ape
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Re: Dealing with death

Unread postby Narz » Mon 22 Oct 2012, 00:15:17

My condolences Mike. :(

My best friend died (suicide) when I was 25 and I still think about it regularly & sometimes have dreams where I "discover" he is still alive & spend the course of the dream trying to save him.

My father died last year, I'm not very close to him though & it didn't affect me much. I respect my father in some ways but I detached many years ago so my reaction when it happened was minimal. That's a tragedy in & of itself but it is what it is. Maybe sometime I'll have a cathartic cleansing experience & be able to truly mourn for him & forgive him, maybe not.

Death sucks, I can see why people get caught up in the whole Singularitarianism n' stuff.
“Seek simplicity but distrust it”
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Re: Dealing with death

Unread postby WildRose » Tue 23 Oct 2012, 19:50:38

I'm very sorry for your loss, steam_cannon. It must have been so difficult for you watching her decline. She sounds like such a wonderful, courageous and generous soul. I can only hope that I will have some of those qualities if ever in a similar situation. I'm happy for you, though, that you were with her when she passed and that you had as good a goodbye as you did under the circumstances.

Today is the second anniversary of my dad's death. He had COPD for many years, which greatly affected the quality of his life, especially in the last few years and of course the last couple of months. When he went into hospital for the last time, he was fighting death for quite a while and was angry and withdrawn. It was painful visiting him; half the time he just wanted us to cut the visits short and leave him alone. When he accepted that death was not far off, he wanted to come home but it wasn't possible. I visited him twice the day before he died, in the afternoon and the evening, and was the last person in my family to speak with him. He told me he had had a palliative care consultation that afternoon and I thought, finally, he'll have more support, maybe the palliative care specialists will be able to give him more physical comfort and also facilitate him saying some of the things he may have needed to say. I honestly thought he'd be there for weeks longer. I kissed him goodnight, told him I'd see him the next day, and at 6 a.m. the next day received a phone call from a nurse on his unit saying that he had taken a turn for the worse. My mom, all my siblings and my husband and I, got down to the hospital as quickly as possible (none of us more than 10 or 15 minutes from the hospital) but he was already gone when we arrived. We just gathered at his bedside and said quick, tearful goodbyes.

I guess my wish for other people is that they can say the things they need to say to each other, both the dying and those who will be surviving them. For the longest time after Dad died, I could only ruminate about his time in the hospital, his suffering, and what went unsaid.

Tonight, my family are gathering at Mom's for tea, and we'll talk and listen to some of my Dad's favorite music.
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