by ChumpusRex » Thu 20 Oct 2005, 11:31:08
I don't really know what I can say, but it's curious that there have been so many reported cases.
I'm not a dermatologist. I've looked at a number of photographs of these fibres posted by several sufferers. To be honest, they look like textile fibres: multicoloured, sometimes multistranded, sometimes embedded in random orientation in flakes of skin or scab.
I note that there are reports of these fibres being analysed and testing as cellulose (the major component of cotton). There are also fluorescence photos - many modern fabrics and detergents contain optical brightners (fluorescent dyes) that convert invisible UV light into visible blue (or other coloured light) making whites, 'whiter than white' - blue (or other coloured) fluorescence on a UV microscope is not unexpected.
I'm slightly surprised that Stenotrophomonas has been blamed. This is a very weakly pathogenic bacterium which fairly commonly lives on the skin. It generally can only infect people with desperately weakened immune systems, and usually with open wounds or intravenous lines. In addition, it is readily out grown by more normal 'friendly' bacteria - so unless someone has had a very long course of very strong broad-spectrum antibiotics (which kill off everything else) they're unlikely to pick it up.
Admittedly, once Stenotrophomonas has taken hold in a weak patient - it's desperately hard to shift. Even massive doses of a cocktail of antibiotics won't readily shift it. Even so, the antibiotics needed (septrin + 1 other - ideally timentin) are pretty toxic - so most doctors would want definitive proof that this is the cause of infection before starting to treat this.
There's not really enough information available on those support group sites, to form a sensible opinion. There's huge quantities of pseudo-science babble that need to be filtered out, and sadly I haven't the time to try and find the useful bits.
A connection to Lyme disease is perfectly reasonable. There are a number of diseases that can cause all sorts of weird symptoms, neurological and psychiatric as well as physical - Lyme is one. And, importantly, there are definitive, easily performed tests available.
Admittedly, not having found anything doesn't mean that there isn't anything to find - but, the fact that some doctors have seen many people and arranged for many laboratory investigations yet the tests reveal no abnormality does not support the idea that there is a consistent biological process in these sufferers.